《Supportive Care in Cancer》:Scope and impact of a First Nations cancer coordinator role: perspectives of multidisciplinary cancer staff
编辑推荐:
为解决澳大利亚原住民癌症结局较差的问题,研究人员开展了关于原住民癌症协调员(FNCC)角色范围与影响的定性研究。通过访谈多学科癌症团队成员,研究发现FNCC通过整合文化智慧、建立信任关系和搭建文化桥梁,显著提升了文化安全性、患者参与度和护理协调效率,为缩小健康差距提供了关键支持。
在澳大利亚, Aboriginal and Torres Strait Islander Peoples(以下尊称为原住民)长期面临着比非原住民更差的癌症结局,包括更高的死亡率和诊断延迟。这些健康差距的根源复杂,涉及癌症筛查障碍、对主流医疗系统的不信任、历史上的创伤经历、文化误解以及医疗服务的碎片化等多重因素。特别是,沟通不畅和护理协调不足,严重阻碍了原住民患者获得及时、整合且文化安全的医疗服务。在这种背景下,一种名为 First Nations Cancer Coordinator(FNCC,原住民癌症协调员)的角色应运而生,其目标是通过结合文化支持和护理协调,帮助原住民患者更好地 navigate( navigating 指引导、穿梭于复杂的系统)癌症诊疗体系。那么,这个角色在实际工作中究竟如何运作?它又被医疗团队成员如何看待?这项发表在《Supportive Care in Cancer》上的研究,从与FNCC并肩工作的非原住民癌症医护人员的视角,深入探讨了FNCC角色的范围与影响。
为了回答上述问题,研究人员采用了一项探索性定性研究设计。该研究的关键特色在于其与一个原住民社区咨询小组(Community Advisory Group)共同设计(co-design),确保了研究过程符合原住民自决原则和文化基础。研究团队在2024年6月至7月期间,通过Zoom对两家大都市医院的10名医护人员(包括医生、护士协调员和专职医疗人员)进行了半结构化访谈。这些参与者均具有为原住民患者提供护理的经验,并曾与一名经过最佳实践模式培训的FNCC合作。访谈内容旨在广泛了解参与者对FNCC角色的核心组成部分及其影响的看法,而非聚焦于个人轶事。数据分析采用了归纳主题分析法(inductive thematic approach),通过反复阅读转录文本、编码和讨论,最终提炼出核心主题。
本研究的主要技术方法包括:与研究相关的原住民社区咨询小组共同设计研究方案,确保文化适宜性;对与FNCC合作过的多学科癌症团队成员进行半结构化访谈以收集数据;采用归纳主题分析法对访谈转录文本进行定性分析,以识别和提炼核心主题;研究遵循了涉及原住民研究的伦理规范,并获得伦理批准。
分析揭示了三个 overarching themes( overarching themes 指 overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes overarching themes 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